Author Topic: Sophie - Great News  (Read 8602 times)

September 03, 2015, 08:41:16 AM
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Just received the from Karen - Sophe's mum:

Hi Bob,

Thanks so much for asking how we are.

Things are looking more hopeful than they have in a very long time.  A long story but Sophie was finally admitted to a neurological rehabilitation Unit up in Chester just before Christmas which has been a huge relief to us as the situation had become so severe we were unable to care for her properly at home.

Progress is exceedingly slow and Sophie is struggling hugely being so far away from home but we have to trust this is the right thing for her.  We try to visit her once a week even though it is a very long journey. 

I hope you and your family are doing well.

Lots of love,
Karen xxxx
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September 03, 2015, 08:58:17 AM
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Great News,and thanks for letting us know Bob.

September 03, 2015, 09:13:30 AM
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@witchone    @janga.stud

I know this will make your day.
A 'Veteran' -- whether active duty, discharged, retired, or reserve -- is someone who, at one point in his life, wrote a blank check made payable to his country for an amount of 'up to, and including his life.'

September 03, 2015, 09:31:00 AM
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Great news Bob. Such a brave young lady who suffers more than her fair share.

September 03, 2015, 09:50:18 AM
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Absolutely Moz.   I think this is where Sophie is at the momeny:

HERE

This must still be quite a strain on Karen.   The journey from Oxford to Chester is around 170 miles.
A 'Veteran' -- whether active duty, discharged, retired, or reserve -- is someone who, at one point in his life, wrote a blank check made payable to his country for an amount of 'up to, and including his life.'

September 03, 2015, 11:28:22 AM
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Brilliant news Bob. Thanks for keeping us posted. It is a long journey but hopefully Karen and the family will see improvements even slight from one week to the next.
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September 03, 2015, 01:19:09 PM
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That's great news Bob. Sounds like a long trip each week for Karen but hopefully there will be some improvement in Sophie's condition as time goes by. Thanks for keeping us posted too.   :)
Kathy

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September 06, 2015, 06:34:45 PM
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@Bob   Thanks so much for letting me know about Sophie.... such good news. :)   Haven't been around for a few days, so only just seen this.
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September 07, 2015, 07:29:08 AM
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Emails between myself and Karen:

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Hi Karen,

So pleased to hear that; it must be a great relief for you.   Just a pity it couldn't be somewhere a bit closer.

I take it that it will be St Cyril's Rehabilitation Unit?   I have two friends who live in Chester and, as it happens, they are both doctors. 
They speak very highly of that unit.

The members of the photo forum send there very best wishes as do I and please give our love to Sophie when you next see her.

Love and best wishes

Bob

Quote
Hi Bob,

Thanks for your kind words and thank the photo forum for their good wishes, I will pass them on to Sophie.  She will never forget everyone’s kindness to her.

Yes she is at St Cyril’s!  How interesting that you have friends who are doctors that speak highly of the place.  That is really good to hear.  Overall we are very pleased with their dedication in trying to help Sophie improve and recover.

We had an unbelievable struggle to get Sophie an appropriate hospital admission despite the severe situation we were in and her life was literally at risk, it was awful.  The NHS had no provision anywhere for her complex situation despite her GP doing her very best to access appropriate inpatient care, she was beside herself with worry.  We did research ourselves and it was us that found that St Cyril’s take patients with very severe ME and put it forward as an option and thankfully after a battle funding was agreed or I don’t know what we would have done.  They were literally the only hospital in the country that agreed to take her ☹

We are off to see her tomorrow, it is a 3 hour journey each way but at least she is safe now.

Take care and many thanks,
Karen xxxx
A 'Veteran' -- whether active duty, discharged, retired, or reserve -- is someone who, at one point in his life, wrote a blank check made payable to his country for an amount of 'up to, and including his life.'

September 07, 2015, 07:40:40 AM
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Hi Bob.  That is good to hear.  Just a shame it's such a long long way away.   :)

September 07, 2015, 07:48:32 AM
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Yes Steve, six hours there and back is a hell of a trek.   But it's plain to see that Karen is very much happier.   I was really rather afraid to contact her in case the news was the worst but Kathy persuaded me.
A 'Veteran' -- whether active duty, discharged, retired, or reserve -- is someone who, at one point in his life, wrote a blank check made payable to his country for an amount of 'up to, and including his life.'

September 07, 2015, 08:51:32 AM
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A 'Veteran' -- whether active duty, discharged, retired, or reserve -- is someone who, at one point in his life, wrote a blank check made payable to his country for an amount of 'up to, and including his life.'

September 07, 2015, 10:07:30 AM
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I made a comment on your FB page, Bob, just to see if others would be interested in the poor lasses condition. I nearly suggested they get in touch with you to elaborate but then thought you might not thank me for the suggestion. I don't know what Sophie's family circumstances are but it must be a strain on their budget. What would you say to raising a few pennies toward the costs they must certainly incur. All I ask is that you don't ask me to organise it. :) The Album(s?) was/were a brilliant gesture and showed what a caring bunch we have on here.

September 07, 2015, 10:10:39 AM
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An excellent idea Moz and one that I had considered but I was not sure how it would be received.   I wonder what other members might think?
A 'Veteran' -- whether active duty, discharged, retired, or reserve -- is someone who, at one point in his life, wrote a blank check made payable to his country for an amount of 'up to, and including his life.'

September 07, 2015, 10:20:00 AM
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I made a comment on your FB page, Bob, just to see if others would be interested in the poor lasses condition. I nearly suggested they get in touch with you to elaborate but then thought you might not thank me for the suggestion. I don't know what Sophie's family circumstances are but it must be a strain on their budget. What would you say to raising a few pennies toward the costs they must certainly incur. All I ask is that you don't ask me to organise it. :) The Album(s?) was/were a brilliant gesture and showed what a caring bunch we have on here.

An excellent idea Moz and one that I had considered but I was not sure how it would be received.   I wonder what other members might think?


@ahab Great idea Moz.  I'M IN!!!      :)
Kathy

FORTNIGHTLY CHALLENGE #24 "Play with DoF " 

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September 07, 2015, 10:25:11 AM
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I could start a 'Just Giving' page which would open the way to receive donations not only from this community but from friends and family too.
A 'Veteran' -- whether active duty, discharged, retired, or reserve -- is someone who, at one point in his life, wrote a blank check made payable to his country for an amount of 'up to, and including his life.'

September 07, 2015, 10:28:48 AM
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I could start a 'Just Giving' page which would open the way to receive donations not only from this community but from friends and family too.

Sounds like a plan Bob.   :-*
Kathy

FORTNIGHTLY CHALLENGE #24 "Play with DoF " 

Life is not measured by the breaths we take...but by the moments that take our breath away.

https://www.flickr.com/photos/97185575@N04/

https://plus.google.com/communities/103600631193580257479- Daily/Monthly Photo Challenge

September 07, 2015, 10:30:10 AM
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If it's well received perhaps we could introduce it to a wider audience such as FB but this would obviously need far more safeguards than we would need on here and may well not be the ideal platform, plus we don't know how well it would be received by Sophie's family.

September 07, 2015, 10:43:03 AM
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I'll do some investigating on how it works and who can see it Moz.    I think I should probably contact Karen and put it to her before we go any further with it.
A 'Veteran' -- whether active duty, discharged, retired, or reserve -- is someone who, at one point in his life, wrote a blank check made payable to his country for an amount of 'up to, and including his life.'

September 07, 2015, 10:46:35 AM
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Probably wise to contact Karen before going further Bob